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What's really important in this world?

Featured Replies

it's quite amazing how all the people on those boards respond to this.

 

I never pray, but I think I may have to make an exception tonight for little Jack.

Now, I remember that every single day is really precious to everyone.

Thank you!!

  • Author
whats this above?

 

I told you in the post. Its Jack's flag. It says in the middle of the picture, its Jack's flag. If you'd read the links on the first page, you'd know about Jack. You'd also have seen what this thread was about and why people were asking you if you'd actually read the first post.

  • Author

No news yet today. the last couple of days its been arriving about 10:30ish. I'll be in work then so will update when I get home.

 

Hope Jack's having a good sleep, and am intrigued to know what today's plan is.

Praying for another sunrise for little Jack :(

  • Author

today is friday! Jack is going on holiday!! this is what Jack's Dad had to say today.

 

Hi,

 

A cloudless azzure blue sky on the south coast and we have had a night without any extra pain relief. To set the scene - we all move into the living room at night, with niki on one sofa with Jack and the girls on mattresses on the floor. I take the small sofa ( 6 ft 2 and sixteen stone on a small sofa)! There is always a happy feeling and everyone drifts off to sleep to the sounds of each other breathing.

 

Every morning its a glance across the room to see my son's chest rise and fall as he is cradled by his exhausted mum and another day begins. It is at these quiet moments that I battle with my feelings. I am so grateful that I can have another day and feel no matter what condition Jack is in, that I can do this forever. Then the sense of reason kicks in and I want my son to be at peace and part of me wishes the end to come, and the guilt I feel lasts all day.

 

But plan for the future we must - we will go away as a family afterwards and take Jack with us in our hearts - the girls are already arguing as to whose lap he sits on when we take off. There strength is my inspiration and I will find a way of making this possible. It has got me thinking about the best holidays and ours was a trip to Euro Disney when we were invited onto Mickey Mouse's float in the Grand Parade. The streets were five or six deep and the more we smiled the more people cheered and the more they cheered the more my children smiled. There was a moment then when all was well in the world and nothing seemed impossible. A small bottle of that feeling would be most welcome this morning.

 

We would love to hear your best holiday places, stories or disasters and I will read them to Jack tonight.

 

Love, as always Gordon, Niki, Vickie, Bonny and Jack

 

http://www.sportnetwork.net/boards/read/s97.php?f=99&i=210994&t=210994&sid=97

  • Author

Saturday morning. jack is still asleep. little fella is having a disco today. from the sound of his dad's post, he hasn't got long til he joins the angels

  • Author

16 days later & jack's still here! :D

  • Author

Jack's monday report:

 

Morning,

 

Its already very warm on a cloudless Monday and Jack lies asleep on the sofa. We have reduced one of his sedatives and his able to open his eyes and appears a little more responsive. This does open a number of questions - What is happening ? Is he aware of us and for how long can this keep going. We now sit him up in his buggy and take him from room to room. He sits next to the dining table when we eat and in the garden when we have visitors. Its like living in a twilight zone where we have this fascade of normality but suffer reality checks that strike like spades around the head. I am also concious of my family sometimes dominating the message board and for that we are both grateful and apologetic.

 

However all this is making me look much older then my tender years suggest - so I have decided to have a " Be Younger " day. I am going to " lay down some phat tunes wiv my crew " before ordering some " wicked threads " from the catalogue. Bonny is going to take me to Body Shop for some moisturiser and Vickie is looking into legal ways of disowning me.

 

Today do something to make you feel younger

 

Gordon .

  • Author

Tuesday!

 

Morning,

 

I have woken, surrounded by everyone kipping in the lounge, with the strangest feeling. It is a mixture of pride and anger. I want to tell you how hard and for how long my son has had to fight.

 

At just 4 months old he showed signs of losing his apetite and we underwent a number of changes of diet before he eventually went in to hospital for a series of allergy and dietary tests. This covered everything from MS and milk intolerance to plain stubbornness (a genetic personality trait that I am rather proud of). Then, in early December, after everything else was discounted a MRI scan showed 'something "in his brain. Further scans indicated a tumour in the middle of Jack's brain, perched on his hyperthalmos. A biopsy at Christmas 2003 gave us the shattering news that Jack had Cancer in the brain, and a particularly rare and unpleasant one - at that he would not see his first birthday. My beautiful baby son had six months to live.

 

Having none of this, Jack endured over 60 doses of Chemo and in May 2005 finished his course with a smaller tumour and the Doctors apologising for suggesting he should have been dead by know. 6 months - my a*** !

 

December 2005 and further scans take us up to date with a tumour that matched Jack's staying power. As Jack's headaches got worse, and his tolerance to the new chemo diminished, surgeons operated again to help reduce the pain and swelling. A successful op reduced the pain and the space left was quickly filled by the cancer. It appeared that he had finally used up his luck vouchers. He sits before me, paralysed, speechless but still my beautiful son and always will.

 

I am just so angry today.

 

However to keep things in context apparently I have agrred to a Girly Day with my youngest daughter and we are going to clear my pores, detox my skin and do our nails. Does this in any way make less masculine - I need to know.

 

Gordon

"we are going to clear my pores, detox my skin and do our nails. Does this in any way make less masculine - I need to know." haha

 

I've decided it would be a disgrace if there ends up being no monument built for Jack in the near future.

  • 2 weeks later...
  • Author

There's likely to be a new angel in heaven soon. They've taken the very difficult decision to reduce the steroids which were keeping the tumour at bay.

Spare a thought or a prayer for Jack tonight.

  • Author

Morning,

 

Jack is very weak this morning and is taking oxygen almost constantly. There appears to be no pain and, dressed in his Tigger jumper, looks every bit a happy and loved little boy.

 

On behalf of all of us - thank you for the love and energy you send and please take time today to tell the people that matter, that you love them.

 

Gordon

  • Author
Jack has gone on his last journey and he has left the house - his coffin was draped in his LONDONIRISH FLAG - and on top of that was Paul Gustards shirt - that he had sent Jack, and he was dressed in his LONDON IRISH SHIRT - jeans and boots - wearing his Bart Simpson Cap - and clutching his best friend Digger.

 

At 5.30 pm a new voyage began for my brave son as he slipped away. Words cant decribe the pain we feel or the pride that I hold for my wife Niki and my daughters Bonny and Vickie.

 

For the love you have sent us we are eternally grateful. Before he set sail he left some instructions

 

 

1 Think of me and smile

2 Talk of me and laugh

3 Remember me and love each other

 

For those wanting to offer condolences Jack has these words

 

1 No flowers cos I sneeze

2 Please spend the money on a party or a drink or a meal or a day out or just a coffee and raise a glass for me.

 

As a family what will really help us is knowing that people are having a good time because of Jack. Thank you for the Ice cream money this will help put smiles on two beautiful faces.

 

Please send details of what you do and this will be a true tribute to a brave little man.

 

Gordon Jacks daddy forever.

 

http://www.sportnetwork.net/boards/read/s97.php?f=99&i=215606&t=215606&sid=97

  • Author

Arrangements for a Celebration

Author: jack's daddy

Date: 22-06-06 12:37

 

"Thank you so much for the messages - we do not feel alone.

 

The celebration of his life will take place next Tuesday at 3pm. It will be a very simple private service. Jack is resting now in his London Irish shirt and his Bart Simpson hat.

 

He will be laid to rest with the LI flag draped across and with Paul Gustard's shirt underneath an expolsion of flowers that will spell JACK.

 

Please join this celebration by doing something special with the people you love and for those who want to attend please use this time (and expense) by doing something for Jack with your special ones.

 

Thank you for understanding and our love goes to all your families

 

Gordon"

 

 

 

Pink for Jack tomorrow

Author: mulledwinemarie

Date: 26-06-06 12:01

 

Hi everyone

 

I have had a few phone calls and mails from Gordon - and I have been asked to let you know about tomorrow - it will be short service - for close family - there will be no written order - as Jack couldn't read or write - just music - and songs -.

 

Jack is dressed in his pink Bart Simpson cap and london Irish shirt clutching his best friend Digger. On the coffin is draped his LONDON IRISH flag which has under it Paul Gustard's playing shirt , and the room is full of balloons.

 

As Jack's favourite colour is PINK - (so he was a fairie really - not a pirate).........Gordon asks for a Pink Tuesday .

 

Gordon has his favourite pink shirt ready which he will wear with his jeans - as he wants people to wear what Jack was used to seeing them in.

 

There will be pink helium balloons released for Jack to catch and hand out to his playmates in the playground in the sky..............

 

So tomorrow we can meet on here at 3.p.m - wearing pink whether a shirt or a t-shirt - and if your work won't allow that - maybe just a little bit of pink somewhere - maybe a rose from the garden in your buttonhole and stuck on your hardhat or just on your desk or table................we can have pink ice-cream,pink gins,pink champagne,pink balloons, AG and black - which makes the white crown go pink, we can sing "The Fields" all together for him......................it is a celebration of his short but inspiring little life - thank you Jack and play well.

 

On Friday Gordon is taking his "girls" away on holiday - no doubt he will send us all a postcard

 

But if anyone wants company tomorrow - I will be at home and on here -

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