::Hayley:: Posted March 25, 2004 Share Posted March 25, 2004 Did anyone watch this show on UK tv? This young man - he was only 36 - was born with a terminal illness called EB which means a constant skin loss throughout live. This show was like a fly-on-the wall documentary showing Jonny's last few months alive. He had incredible spirit.... and although upsetting to watch, I feel like he's happy now! http://www.channel4.com/health/microsites/B/boy_whose_skin_fell_off/index.html Link to comment Share on other sites More sharing options...
busybeeburns Posted March 25, 2004 Share Posted March 25, 2004 ooo there's two threads :o ;) also http://www.debra.org.uk/help/jk.htm please read :cool: Link to comment Share on other sites More sharing options...
::Hayley:: Posted March 25, 2004 Author Share Posted March 25, 2004 2 threads? thanks for that link btw :) Link to comment Share on other sites More sharing options...
Mimixxx Posted March 26, 2004 Share Posted March 26, 2004 Ooops sorry didn't see this thread! Link to comment Share on other sites More sharing options...
*Ali* Posted April 3, 2004 Share Posted April 3, 2004 yeah i saw that. i was totally unprepared for what i saw. i had never heard of that disease before but oh my god how hard it must have been for him. he had an incredible sense of humour though, i don't know anyone who would put heinz beans on their coffin to make people laugh at their funeral! Link to comment Share on other sites More sharing options...
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